THE Dr appointment today went well. Diabetes pump is working well controling the insulin levels and blood sugars. The Dr who use to be afraid of all dogs - let Emma lay under her little desk in the room. She now isn't so afraid of dogs and she thanks Emma.
Emma did great. Time outside, a nap, and a quiet night watching the Twins game sounds is how we are filling our day now.
She is doing great. I am having some breathing problems and trying to handle it hear so I won't have to go into the hospital for help.
Sat plan to be home all day. Outside a lot since it will be nice out.
Have a great weekend - Mary
Friday, April 9, 2010
Thursday, April 8, 2010
Very tired tonight.
MS Specialist Appointment today.
Diabetic Specialist Friday
MRI on Monday
MS Specialist again on Turesday
Asthma Specialist Next Friday
I am weaker than normal, struggling a bit with my breathing and have been going to bed around 7 pm and sleeping 12 hours.
They are taking me off one medicine to see if it makes any difference. The concern now is that damage in my brain stem might be contributing to the breathing and health problems.
Twins play tonight but I will be sleeping away I think...Emma at my side. She has been great all day. I will get better but please understand if I don't write much. Just feeling crummy....
Emma brightens the days and nights...Mary and Emma
Have a good day.
MS Specialist Appointment today.
Diabetic Specialist Friday
MRI on Monday
MS Specialist again on Turesday
Asthma Specialist Next Friday
I am weaker than normal, struggling a bit with my breathing and have been going to bed around 7 pm and sleeping 12 hours.
They are taking me off one medicine to see if it makes any difference. The concern now is that damage in my brain stem might be contributing to the breathing and health problems.
Twins play tonight but I will be sleeping away I think...Emma at my side. She has been great all day. I will get better but please understand if I don't write much. Just feeling crummy....
Emma brightens the days and nights...Mary and Emma
Have a good day.
Wednesday, April 7, 2010
MS Camp/Resort in Less Than Six Weeks
I can't believe how fast this week is going.
Wed and another dr appointment. This time allergy testing to see if that is a factor in the asthma/breathing problems issue. The skin tests were all negative. No allergies found so that is good. Next week an asthma specialist, Friday my diabetic specialists and tomorrow the MS Specialists...what a week this has been.
Emma is doing fine. We are both napping a lot but also taking time to be outside. Yesterday it rained so not outside as much. We need more rain here - it was pretty light here. Emma is fetching toys and getting her exercise. We also have the scooter ready to roll so can start walking her daily. Good for both of us to do this even if I 'ride".
the Allergist I saw today was so easy to talk to, and informative. He was glad to report no allergies to Emma. We didn't think I had allergies but were trying to figure out what is triggering these breathing problems.
The past few days have been a bit tougher but I am coping. Will see what each day brings and get the most I can out of the specialists visits.
Hope all is well with you. MS Camp is now called the MS Resort. I go in May and it is less than six weeks away. Both Emma and I will be going. It is so much fun. We can't wait. Early spring puts us in the mood for sure.
Mary and Emma wish you a good day.
Wed and another dr appointment. This time allergy testing to see if that is a factor in the asthma/breathing problems issue. The skin tests were all negative. No allergies found so that is good. Next week an asthma specialist, Friday my diabetic specialists and tomorrow the MS Specialists...what a week this has been.
Emma is doing fine. We are both napping a lot but also taking time to be outside. Yesterday it rained so not outside as much. We need more rain here - it was pretty light here. Emma is fetching toys and getting her exercise. We also have the scooter ready to roll so can start walking her daily. Good for both of us to do this even if I 'ride".
the Allergist I saw today was so easy to talk to, and informative. He was glad to report no allergies to Emma. We didn't think I had allergies but were trying to figure out what is triggering these breathing problems.
The past few days have been a bit tougher but I am coping. Will see what each day brings and get the most I can out of the specialists visits.
Hope all is well with you. MS Camp is now called the MS Resort. I go in May and it is less than six weeks away. Both Emma and I will be going. It is so much fun. We can't wait. Early spring puts us in the mood for sure.
Mary and Emma wish you a good day.
Monday, April 5, 2010
We had a nice Easter. It was quiet though. We missed Mike, Tia, and Sophia and Rosa. The other children were here but we all seemed tired i guess. We had dinner early at 12:30 and everyone was gone around 5:30. We talked rather than play games and had a nice day.
Sat we were at the Twins Game. Emma stayed home till I went once to check out the space. It was fun and we all enjoyed it. We did NOT have handicap seating as we were told it was sold out. We also were told in our area there was a place to park the scooter but that was false. To resolve the situation two non handicap people in those seats changed seats with Greg and I. Kind of them. We did not get to sit with Dan, Mike, Tia, Sophia and Rosa however which was a bummer. Rosa sat by us though part of the game. I mean with us. The Twins won the exhibition game. So exciting to be at the park.
Glad I was on the scooter it was a long long way to parking from our seats. Emma did fine at home and accompanied us to the Sat Easter Vigil Mass. That lasted two hours and both she and Rosa (after a nap) handled it well I thought. It was lovely but oh so long. I was so tired out. Greg needed to be there at that specific service/Mass for his work duties. I was glad to go with him.
Mike was there also.
All in all a good weekend. I had to go to bed very early on Sunday night. Friday night Rosa slept over which was super fun. I had to take a morning nap today Monday to get moving for the day. We window shopped awhile with Emma and she was perfect. Greg also did some planting so we were outdoors. It was another good day.
Tomorrow I hope to have the energy for water exercise. The last several times I have not been able to do the full routine without breathing issues. So I will do what I can. We have Dr appointments wed, Thurs, and Friday and one next week and the following week. So that will maybe help me out.
We are enjoying being outside more. Sitting in front or the back yard. Emma loves the fenced yard in the back.
We hope to watch the beginning of the Twin's Season Opener Tonight. Since it is in California it starts at 9 our time. NOt sure I napped enough to watch much of the game but will at least start it.
Emma had a great day. She was so well behaved everywhere we went today. She didn't mind me taking two naps with her at all of course. She makes noises when she dreams.
Wishing you pleasant dreams and sunny days.
Emma and Mary
Sat we were at the Twins Game. Emma stayed home till I went once to check out the space. It was fun and we all enjoyed it. We did NOT have handicap seating as we were told it was sold out. We also were told in our area there was a place to park the scooter but that was false. To resolve the situation two non handicap people in those seats changed seats with Greg and I. Kind of them. We did not get to sit with Dan, Mike, Tia, Sophia and Rosa however which was a bummer. Rosa sat by us though part of the game. I mean with us. The Twins won the exhibition game. So exciting to be at the park.
Glad I was on the scooter it was a long long way to parking from our seats. Emma did fine at home and accompanied us to the Sat Easter Vigil Mass. That lasted two hours and both she and Rosa (after a nap) handled it well I thought. It was lovely but oh so long. I was so tired out. Greg needed to be there at that specific service/Mass for his work duties. I was glad to go with him.
Mike was there also.
All in all a good weekend. I had to go to bed very early on Sunday night. Friday night Rosa slept over which was super fun. I had to take a morning nap today Monday to get moving for the day. We window shopped awhile with Emma and she was perfect. Greg also did some planting so we were outdoors. It was another good day.
Tomorrow I hope to have the energy for water exercise. The last several times I have not been able to do the full routine without breathing issues. So I will do what I can. We have Dr appointments wed, Thurs, and Friday and one next week and the following week. So that will maybe help me out.
We are enjoying being outside more. Sitting in front or the back yard. Emma loves the fenced yard in the back.
We hope to watch the beginning of the Twin's Season Opener Tonight. Since it is in California it starts at 9 our time. NOt sure I napped enough to watch much of the game but will at least start it.
Emma had a great day. She was so well behaved everywhere we went today. She didn't mind me taking two naps with her at all of course. She makes noises when she dreams.
Wishing you pleasant dreams and sunny days.
Emma and Mary
Friday, April 2, 2010
Rosa is here overnight. She is being great and enjoying her time so far.
We are going to watch a Dora movie. Emma will lay with us. Emma and I had a great time day today. What a good day we had just at home taking it easy, and napping.
Rosa is 3 and asking us why Jesus died. Boy that is a tough one to answer at her age.
We are having a restful day. Tomorrow we go to the Twins Game at their new outdoor stadium. It should be fun for all of us. I will take my scooter.
Enjoy your weekend. Rosa is ready to play more with Grandma.
Mary and Emma say hello.
We are going to watch a Dora movie. Emma will lay with us. Emma and I had a great time day today. What a good day we had just at home taking it easy, and napping.
Rosa is 3 and asking us why Jesus died. Boy that is a tough one to answer at her age.
We are having a restful day. Tomorrow we go to the Twins Game at their new outdoor stadium. It should be fun for all of us. I will take my scooter.
Enjoy your weekend. Rosa is ready to play more with Grandma.
Mary and Emma say hello.
Thursday, April 1, 2010
No fooling!!
Almost 80 degree here. Had lunch outside with a friend. Enjoyed time on the deck together.
WE had lunch at a place where you eat outdoors.
Another service dog was there.
It was not Helping Paws.
Guess which dog did not get upset?
Guess which dog just followed my cues like always.
Way to go Emma.
Met Nancy Schapiro's Dad and that was fun. Staff of Helping Paws know who I mean. Always fun to meet Helping Paws supporters.
Did I mention we found a wild turkey in our yard?
We had fun and then a long nap. When it gets this warm it does tire me a bit more than normal. Okay the closer to 80 and above the more fatigue and difficulty getting the nerves to get messages from the brain. Not complaining though it was wonderful.
A quiet night tonight for us.
Way to go Emma - we had such a nice day.
Mary and Emma
WE had lunch at a place where you eat outdoors.
Another service dog was there.
It was not Helping Paws.
Guess which dog did not get upset?
Guess which dog just followed my cues like always.
Way to go Emma.
Met Nancy Schapiro's Dad and that was fun. Staff of Helping Paws know who I mean. Always fun to meet Helping Paws supporters.
Did I mention we found a wild turkey in our yard?
We had fun and then a long nap. When it gets this warm it does tire me a bit more than normal. Okay the closer to 80 and above the more fatigue and difficulty getting the nerves to get messages from the brain. Not complaining though it was wonderful.
A quiet night tonight for us.
Way to go Emma - we had such a nice day.
Mary and Emma
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